Thursday, October 6, 2011

K-pouch rocks

Literally.
I have 5 little rocks in my pouch.
Dr Shen did a scope on me this afternoon and much to our mutual chagrin, he found some rocks.
The the really bad part is that they were too big for him to pull out, and they are sort of plugging up the entrance of my small bowel to my pouch and that is part of what is making me backed up, nauseated etc.
So I'm on a full liquid diet until further notice.
Gonna consult with my surgeon Dr Remzi and also with a urologist because there is a therapy that is used to use sound waves to break up kidney stones, and I think the idea is to use it on me to break up the stones in my pouch so they can be removed.  Hopefully, I won't need surgery.
So, what are these stones?  Don't think we'll know till they pull them out and send them to the lab.
Most painful scoping procedure I've had and I was sedated :(
Its been a long day and I'm ready for bed.
On the up-side, at least we know what the problem is.

Wednesday, October 5, 2011

If its not one thing

So I spent all day Friday in the ER, and all weekend in the hospital, again.
*sigh*

I thought I had a GI bug.  Really bad nausea, diarrhea and then I threw up.  Couldn't even look at food, couldn't get myself to drink and just knew I was getting dehydrated.  Upper abdominal pain and radiating to my back as well.  Thursday night diarrhea got so bad I had to intubate 4 times, had my husband drive to me the local ER at 7am because I just can't drink enough and I'm miserable.
Got some fluids, some anti-nausea meds and some pain relief.  I got 1000ml of normal saline and 500ml of CT contrast down and only peed 2 times.  By noon, starting to feel much better and request to go home.  Attending Dr. comes in 'you have a massive chron's flare, you need a surgical consult.'
Well the "S" word means I'm NOT hanging out at the local hospital so I tell them in my tears that if its that bad I'm going to Cleveland Clinic.  So, after some steriods and some antibacterials IV they packed me up and sent me off.
Admitted to CC Friday night and wasn't discharged until Monday night with no answers.
Chron's flare?  At first they say yes, then, not sure.
They think obstruction, but change their mind because no more vomiting, holding down fluids ok,  not like any obstruction pain I've had before.
Peritonitis?
Some kind of inflammation outside the pouch? maybe or, well, it must be the pouch.  Have a pouchoscopy - pouch is CLEAN
Not pouchitis.  (GOOD).
Well my pancreatic enzymes are elevated but not like for acute pancreatitis (which I have had before) but my blood glucose is also elevated which is really abnormal for me.
I THINK its chronic pancreatitis, idiopathic - which happens in 30% of cases.  But as of now its still a big ???? and just another....  will I ever really be healthy?