Tuesday, November 15, 2011

Something will be done

So the stone-destructing date is set - Dec 13th.
I emailed with the urologist Dr Monga (who is very nice) and he agreed that Dr Shen or Dr Remzi could be at the surgery to look after the k-pouch since this is his first time blasting bowel stones.  He's done stones in the gallbladder, kidney and bladder and I'm very confident in his skills, its just I know the valve of the k-pouch is kinda fragile (for lack of a better word) and I don't know how much manipulation it can take.  I feel better that my Docs who really know k-pouches will be there to look out for me!
So, I'm nervous, or perhaps anxious is a better word.  Not as bad as I was before, because now I do believe this really is the best option for me, and I know I'm in the best hands.
Surgery is always scary when general anesthesia is concerned, and I've had enough of it to know that things don't always go as planned.  Sometimes as I lie awake at night trying to sleep a lot of memories come back, and as I start to imagine what will happen next I can smell the OR, and feel the cold room and see the machines and tiny table.  I remember what its like to scoot onto it and have electrodes hooked up and lay there wondering how far my heart rate will go up before they sedate me.  Its not always fear of the unknown that is the worst.
My mom is coming up to spend time with me and look after me 'just because'.  I've had health problems since I was a kid so we have this hospital bond you see.  I'm glad she's coming,
But right now, I need to focus on school, finals are right around the corner.

Friday, November 4, 2011

Something must be done

Saw Dr Shen today and we talked about what to do with the rocks in my pouch.  He said, I could let them stay there as I am currently asymptomatic, but he doesn't recommend it, the rocks may occlude the inlet from my small bowel at any time and I could be obstructed.  So, that'ts not good.  He said not sure what the rocks are made from, they won't go away on their own, and they may even grow.  So, that's not good either.
So, I'm going to go ahead with this procedure with the urologist where he goes in through the stoma with a tool and camera and blasts them apart with his mini jack-hammer.  I discussed my concerns about a urologist messing about with my k-pouch (which of course is made of small bowel) and the risk of the valve being damaged etc. he still says he thinks it is better than open surgery and I trust him.  And he agreed that he or Dr Remzi should be there during the procedure, since a urologist really doesn't know about a k-pouch.  He's just really good with his stone-destructing tool.  So I feel a lot better knowing one of them will be there since this is a 1st time event.  Making history isn't as fun as it sounds.  Hopefully going to do it early December and I'll get a date after I talk to the urologist.
So....
I feel better having had a thorough discussion about it with Dr Shen.  And hopefully in December I'll get rid of these stones.